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A Discouraging Message

Taters

I spoke with the nurse today regarding Tater's tests. She appears to have unfortunately passed with flying colors. The doctor still needs to review the results so I may hear something different tomorrow. With the negative result in hand, I allowed her to munch away on some Wheat Thins doused with a little line of Easy Cheese (a nasty habit inherited from her father - I hate the stuff). Within about ten minutes, her bellyache kicked in and now she feels like crud. I read the list of ingredients on both items and I'm at a loss as to what could have caused her to feel so bad (and I did check for Red Dye - thanks Indie).

I'm not going to let this go because I know that something is wrong. Sure, she's a bit of a drama queen, but in all honesty, I truly believe her when she says she's in pain. She has a great pediatrician who also believes her and most importantly, listens to Tater when she describes her pain. I'm not sure what the next steps will be but I look forward to solving this mystery and getting my little girl well again.

Comments

Beautiful picture.
Before hearing of your test results I asked a 'gluten-free' friend for views. Here's her response. I'll pass the list on when I get it. Whatever the tests may say it sounds like gluten free may be worth trying for a while.
"Hiya!!!! Hello!! Hope you and yours are fit and well, as well as can be expected, anyways!! I hope that I can help your friend, it's really hard when you first find out that you're gluten intolerant, the whole world seems to consist of gluten filled products and you can't have any of it!! Has she seen her g.p.? If their system is anything like ours, she should be entitled to some gluten-free products from her doctor. Also, tell her to check out Walmart, as they're related to Asda and Asda do a really good range of gluten-free products. Do the Americans have Aldi or anything similar? I only ask because a lot of their 'everyday' foods are gluten-free and their labelling system is really good and really clear. Some labels are bloody difficult to read and to understand, unless you have a phd in psychobabble!! I'm going to try to get a list together of the main food groups you can eat and those you can't. But..it will take me a day or two, so please don't beat me if I take a while longer than you would have liked!! I'm off to do some looking up and cross referencing, I'll be back in touch within the next few days with a list that, hopefully, will help out. Speak to you soon, look after that good lady of yours, Ooh and I guess you'll have to look after Jo, too!! Lol!! Luv'n'stuff, you know the rest xxxxx"

Even though the celiac came back negative doesn't necessarily rule out a gluten intolerance, though, right? Because there is a difference between allergies and intolerances. I've read my eyeballs out researching the difference between a milk allergy versus a milk protein intolerance. (gah) And then all of the different ingredients that are really eggs or milk but you'd never know because they change what they call stuff. Last night I found the Food Allergy and Anaphylaxis network (www.foodallergy.org) and ordered a cheat sheet for hidden ingredients. For instance, casein or caseinates are milk derivatives and sodium caseinate is often in lunch meats - go figure, I can't feed my kid sliced turkey from the deli because of a milk allergy!

Anyhoo, my whole point in all this babbling is that you had posted earlier that Taters felt better after you eliminated gluten from her diet. And then when she ate the crackers and plastic cheese (I love the stuff, too), she immediately had her tummy ache again. Test or no test, there still seems to be a correlation to her consuming a wheat product. Food for thought...no pun intended. I really liked Indie's idea about logging every ingredient (I'd do it in excel...I'm a nerd) and seeing if a pattern emerges. I'd also consider going gluten free for two weeks and then introducing things one by one again.

I hope things work out soon...no more tummyaches for Taters and peace of mind for mom.

Maybe a wheat allergy or soy?? I have to log everything Winston eats because he has horrible headaches... I didn't know that processed foods caused them.. But I do now! Good luck and keep us posted!

I hope you find out what's going on soon.

Thanks everyone. I really appreciate your kind thoughts, words, and ideas. I'm looking into everything as of this point so all this information really does help. Again, thank you so much for your support.

It sounds like it could be a gluten allergy. You might have her checked for Chrohn's too...but it doesn't really sound like that.

My sister is 26. Bad , bad bowel, fainting, nausea issues all through high school and college. Diagosed loosely with everything, even "faking it". Worked with a natural health guy who guessed at a ton of issues. Found out about Celiac, went on the diet, was "cured"- felt 100% better. Started sneaking in foods again (this was about 2 years ago) and still did fine. Then started looking for sure at celiac because she had trouble conceiving. Doc tested. Called her- nope, she doesnt have it. Took 6 panels of blood, all said no. She had PCOS and diabetes but not celiac's. Then the DNA test came in and wham, YES she has it. So my point is, doc said it only takes 1 of the tests to be correct for it to be true that you have celiac (espe. since she had symptoms and the diet helped.) She googled a celiac specialist and she was the one who finally diagnosed her. Also, her reactions to things like vinegar are getting more and more severe. Almost hospitalization. And, with celiacs, damage is being done to their intestines, so if you think that's what it is, push the issue and start talking to experts. My mom is pretty sure her dad had it his whole life and just ended up avoiding all the gluten foods on his own to keep his tummy fine.

Thanks so much for this information. I'm keeping her on the gluten free diet and the doctor even agreed that sometimes the tests are wrong. She just seems to be a different kid when I keep that stuff out of her diet. We are going to re-test her in a year (if not sooner) and I'm meeting with a nutritionist who's going to help me with a diet plan. I'd hate to think she has Celiac's and that she's causing damage to her little body.

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